Psychosocial Well-Being and Support Needs of Siblings of Children with Chronic Health Conditions

Griffith University researchers want to understand the experiences of parents and siblings of children with chronic health conditions, including their needs and preferences for support. [This study has CLOSED].

Family and caregiving

This study is now closed. Please refer to our Research Studies page to view our ongoing studies.

Study Purpose/Description

This research aims to understand the experiences of parents and siblings of children with chronic health conditions, including their needs and preferences for support. The results of this study will help researchers to develop support programs to better meet the needs of families of children with chronic health conditions in Australia.

What’s Involved?

You will be asked to share your experiences and perceptions regarding the impact of your child’s chronic health condition on you and your family in a 45-minute online interview.
Your child who does not have a chronic health condition will also be invited to complete an online interview later, with your consent. But you have the option to participate only in the parent interview.

Families will receive a 30AUD Coles gift voucher as reimbursement for their time.

Recruitment criteria

You may be eligible to participate in this study if:

One or more of your children have a chronic health condition (such as asthma, allergic rhinitis, eczema, chronic sinusitis, migraine, otitis media, chronic bronchitis/bronchial disease, type 1 diabetes, epilepsy, and cystic fibrosis), and
One or more of your children do not have a chronic health condition (comprising of the above conditions)
One of your children who do not have a chronic health condition is aged between 5-12 years old, and
You are willing to take part in an online interview with the researcher.

Benefits

The findings will help to find better ways to support families of children with chronic health conditions, including healthy siblings.

Study sponsor / funder

Join Us Register

For Participants

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Resources

An initiative of

The Join Us Register Acknowledges the Traditional Owners of the lands across Australia as the continuing custodians of Country and acknowledge the many Aboriginal and Torres Strait Islander people of this land. We pay our respect to First Nations peoples and Elders, past and present.

We acknowledge and celebrate the knowledge and the strengths of Aboriginal and Torres Strait Islander peoples and communities and recognise their continuing connection to land and waters.

We thank the many Aboriginal and Torres Strait Islander communities, and the many individuals, organisations that have supported and guided us through our journey.

There is a huge opportunity to partner more with Aboriginal and Torres Strait Islander communities to build on existing community strengths and resilience, often in the face of ongoing inequities. Through Join Us, we will work together in the spirit of reciprocity to address ongoing impacts of colonisation so that we can all realise optimal health and wellbeing.

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The Join Us Register is currently funded by the Australian Stroke and Heart Research Accelerator (ASHRA).

For more information about ASHRA, click here.